Spotlight On...

In our advocacy work around the world, we meet an amazing array of individuals and organizations—those who are truly "out in the field" working to make changes in policy, standards of care, and patients' day-to-day lives.

We wanted to shine a light on some of their efforts with interviews that explore their backgrounds, experiences, and unique perspectives on the world of rare disease advocacy.

Advocate to Advocate: Meet Christine Lavery

Lori Gorski | November 11, 2015

To help inform and inspire, we are initiating a new video series called Advocate to Advocate. We will be regularly featuring brief video interviews with patient organization leaders around the word. Our goal is to share stories of how advocates star...

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Meet Jean Campbell, Rare Disease Advocate

Cara Hesse | May 29, 2012

Rare Disease Advocate and Genzyme PAL Awards Judge As a nationally recognized rare disease patient advocate with an impressive record of success in fundraising and corporate relations, we recently asked Jean to share some of the insights she's glea...

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