Rare Disease Day

Rare Disease Day is just 15 days away!

Cara Hesse | February 13, 2014

Like many of you, we’ve been busy planning for Rare Disease Day on February 28th and we’re looking forward to kicking off our activities. Our advocacy partners have told us about some of the wonderful activities being planned to galvanize this v...

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Genzyme Honored by EURORDIS

Annamarie Dillon | February 27, 2013

Last night, Jamie Ring and I had the great opportunity to attend the EURORDIS Black Pearl Gala Dinner in Brussels, Belgium. During the evening’s ceremony, Genzyme was presented with the EURORDIS Company Award which recognizes the outstanding accom...

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Rare Disease Day is Less Than a Week Away!

Cara Hesse | February 21, 2013

Like many of you, we’ve been busy planning for Rare Disease Day next week and we’re looking forward to kicking off our activities. We’ve heard from our partners about some of the amazing activities being planned to celebrate, empower and mobil...

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Rare Disease Day is Almost Here!

Jamie Ring | February 12, 2013

Like many of you, we are well into our planning for Rare Disease Day 2013 activities! This year’s theme, Rare Disorders Without Borders, is a powerful message that I know all of us in the rare disease space can appreciate. As an organization with ...

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Are You LinkedIn for Rare Disease Day?

Cara Hesse | February 05, 2013

If you’re looking for another way to connect to the global rare disease community, you may want to consider using web-based LinkedIn (www.linkedin.com). This online platform hosts more than 33 groups focused on rare diseases, with the Rare Disease...

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What Are You Doing for Rare Disease Day 2013?

Cara Hesse | January 16, 2013

Is February 28, 2013 circled on your calendar? Well it should be! Rare Disease Day (RDD) will soon be upon us and it's never too late to start thinking through how to maximize the day to raise awareness.   EURORDIS, the creator of Rare Disease Day,...

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