Global

Will we see you at WORLD?

Kathleen Coolidge | January 14, 2016

We’ve heard from several of our partners that they will be attending this year’s Lysosomal Disease Network WORLD conference next month. Will you be there? If so, let us know! Please send us an email so we can try to make arrangements to meet. Fo...

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Advocate to Advocate: Meet Christine Lavery

Lori Gorski | November 11, 2015

To help inform and inspire, we are initiating a new video series called Advocate to Advocate. We will be regularly featuring brief video interviews with patient organization leaders around the word. Our goal is to share stories of how advocates star...

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Here’s What We Heard from You

Lori Gorski | November 10, 2015

Recently, Genzyme Rare Community sent out an email survey to our patient advocacy organization subscribers. We wanted to know  how we were doing. Is our content useful? What are we missing? Thank you to those who took that time to fill out the surv...

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Changes to Rare Community Coming Soon!

Jamie Ring | October 09, 2013

In the coming weeks, we will be unveiling the newly designed Genzyme Rare Community website. Along with the new look and feel will be greatly enhanced functionality such as social sharing through Facebook and Twitter. We’ve heard from patient grou...

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