Genzyme advocacy

Here’s What We Heard from You

Lori Gorski | November 10, 2015

Recently, Genzyme Rare Community sent out an email survey to our patient advocacy organization subscribers. We wanted to know  how we were doing. Is our content useful? What are we missing? Thank you to those who took that time to fill out the surv...

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Advocacy in Practice

Barbara Diana | October 20, 2015

Raising awareness of rare diseases is a shared mission. And raising LSD disease awareness and funding for a patient group at the same time is a win-win situation. That’s just what happened at the recent Society for the Study of Inborn Errors in Me...

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Principled Collaboration

Jamie Ring | July 17, 2012

Jamie Ring, Senior Director for Patient Advocacy at Genzyme, shares her perspective on patient organization and industry collaboration. When I first joined Genzyme, I spent my first few weeks reviewing the values of patient advocacy with Sara, my m...

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Advocacy in Industry

Jamie Ring | May 22, 2012

When I started working at Genzyme in 2005, I immediately realized how lucky I was to be in patient advocacy. Having worked at another biotech company and also at a non-profit organization in the health care arena, I had never heard about such a role...

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