Events

Will we see you at WORLD?

Kathleen Coolidge | January 14, 2016

We’ve heard from several of our partners that they will be attending this year’s Lysosomal Disease Network WORLD conference next month. Will you be there? If so, let us know! Please send us an email so we can try to make arrangements to meet. Fo...

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Advocacy in Practice

Barbara Diana | October 20, 2015

Raising awareness of rare diseases is a shared mission. And raising LSD disease awareness and funding for a patient group at the same time is a win-win situation. That’s just what happened at the recent Society for the Study of Inborn Errors in Me...

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