Best practices

One Size Does Not Fit All

Jamie Ring | June 19, 2013

In April, I had the great pleasure of being invited by Siren Interactive to speak on a panel held prior to the World Orphan Drug Congress. It was an honor to be on the panel with three incredible individuals: Pat Furlong from Parent Project Muscular...

Read more...

HealthCanada Embraces an Orphan Drug Framework

Cara Hesse | December 11, 2012

This past month, 2.8 million Canadians with rare diseases had cause to celebrate with two announcements from the Canadian Government. Reversing a 16-year old policy, HealthCanada will now establish a rare disease framework that could potentially lea...

Read more...

Principled Collaboration

Jamie Ring | July 17, 2012

Jamie Ring, Senior Director for Patient Advocacy at Genzyme, shares her perspective on patient organization and industry collaboration. When I first joined Genzyme, I spent my first few weeks reviewing the values of patient advocacy with Sara, my m...

Read more...

Pages