Kathleen Coolidge's blog

Will we see you at WORLD?

Kathleen Coolidge | January 14, 2016

We’ve heard from several of our partners that they will be attending this year’s Lysosomal Disease Network WORLD conference next month. Will you be there? If so, let us know! Please send us an email so we can try to make arrangements to meet. Fo...

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Advocate to Advocate: Meet Rhonda Buyers

Kathleen Coolidge | December 02, 2015

We are delighted to bring you are second video in our new series called Advocate to Advocate. We created this series based upon feedback you provided to us. Namely, you’d like to learn more about best practices, and to hear more from advocates aro...

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