Barbara Diana's blog

PAL Award Recipients Announced!

Barbara Diana | January 06, 2016

We are very pleased to announce that three patient organizations -- from Spain, Taiwan and the United Kingdom -- have been selected to receive 2015 PAL Award grants. Proposals were received from patient organizations in 20 different countries and in...

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Advocacy in Practice

Barbara Diana | October 20, 2015

Raising awareness of rare diseases is a shared mission. And raising LSD disease awareness and funding for a patient group at the same time is a win-win situation. That’s just what happened at the recent Society for the Study of Inborn Errors in Me...

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PAL Award Review Committee Announced!

Barbara Diana | August 27, 2015

We are pleased to announce that the external Review Committee for the 2015 PAL Awards program has been selected. Together, Jean Campbell, Patricia Collins, and Pat Furlong bring a tremendous depth of knowledge and expertise in global non-profit fund...

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Announcing PAL Awards 2015!

Barbara Diana | July 29, 2015

We are pleased to announce the fifth annual Patient Advocacy Leadership Awards (PAL Awards) program for non-profit patient organizations that serve the lysosomal storage disorder (LSD) patient community. The PAL Awards program supports innovative co...

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