Are You LinkedIn for Rare Disease Day?

Cara Hesse | February 05, 2013

If you’re looking for another way to connect to the global rare disease community, you may want to consider using web-based LinkedIn (www.linkedin.com). This online platform hosts more than 33 groups focused on rare diseases, with the Rare Disease...

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What Are You Doing for Rare Disease Day 2013?

Cara Hesse | January 16, 2013

Is February 28, 2013 circled on your calendar? Well it should be! Rare Disease Day (RDD) will soon be upon us and it's never too late to start thinking through how to maximize the day to raise awareness.   EURORDIS, the creator of Rare Disease Day,...

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Caregiver Awareness Throughout the Year

Alan Gilstrap | January 16, 2013

Two caregivers, Lisa Bosdet and Dan Kuusisto, participated in an Advisory Board meeting of caregivers in 2012. Lisa and Dan, along with fellow caregiver and meeting participant, Jason Blair, all share the common experience of caring for a loved one...

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