Rare Disease High School Curriculum

Dan Leonard | March 05, 2013

Attendees at the National Society of Genetic Counselors (NSGC) annual conference learned about a unique way for high school students to understand the science behind rare diseases. Julia Su, a genetic counselor from Canada, created a biology curricu...

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Genzyme Honored by EURORDIS

Annamarie Dillon | February 27, 2013

Last night, Jamie Ring and I had the great opportunity to attend the EURORDIS Black Pearl Gala Dinner in Brussels, Belgium. During the evening’s ceremony, Genzyme was presented with the EURORDIS Company Award which recognizes the outstanding accom...

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Rare Disease Day is Less Than a Week Away!

Cara Hesse | February 21, 2013

Like many of you, we’ve been busy planning for Rare Disease Day next week and we’re looking forward to kicking off our activities. We’ve heard from our partners about some of the amazing activities being planned to celebrate, empower and mobil...

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Rare Disease Day is Almost Here!

Jamie Ring | February 12, 2013

Like many of you, we are well into our planning for Rare Disease Day 2013 activities! This year’s theme, Rare Disorders Without Borders, is a powerful message that I know all of us in the rare disease space can appreciate. As an organization with ...

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