Cara Hesse | April 05, 2012

Welcome to Genzyme’s Rare Diseases Advocacy Website.  Since 2001, the patient advocacy team at Genzyme has had the privilege of working with advocates from around the world in an effort to help improve health outcomes for those living with rare diseases.  As we’ve learned through our many interactions with you -- the advocacy leaders of the global rare disease community -- there is great power in sharing best practices and creating forums for the exchange of information.  While numerous online forums exist today, our hope with this website is that we, as a Genzyme community, can provide you with more timely information about our activities while also highlighting the good work being done by all of you.  This site is the first of its kind sponsored by a biotechnology company and we look forward to your ideas, suggestions, and feedback to make this useful and informative.  

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