Protections for People with Rare Disorders in the U.S. – “Applying GINA”

Kathleen Coolidge | May 03, 2012

The Genetic Alliance recently hosted a great educational webinar on GINA, the law enacted in 2008 by the U.S. Congress to protect individuals with genetic disorders from discrimination by employers or health insurers. While the law's crucial protections have been in effect for quite some time, questions continue to arise, particularly with regard to its application in the diagnostic process. Webinar presenters provided a number of case studies for applying GINA that included Fabry, Pompe, Gaucher, and MPS I, along with other rare diseases.

The Genetic Information Nondiscrimination Act of 2008 (GINA) legislation also bars employers from using individuals' genetic information when making hiring, firing, job placement, or promotion decisions. GINA also prevents health insurers from denying coverage to a healthy individual or charging higher premiums based solely on a genetic predisposition to developing a disease in the future.

Check out the video below to see the whole GINA webinar and click here to watch more great webinars from the Genetic Alliance.

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