Presentations Now Online for the EURORDIS Membership Meeting 2013

Annamarie Dillon | August 06, 2013

Dubrovnik, Croatia set the scene for EURORDIS’ annual membership meeting where over 200 participants from more than 30 countries convened to discuss a wide range of issues facing the rare disease community. Topics included National Plans for Rare Diseases, newborn screening and genetic testing, strategies and tools for improving patients’ access to orphan medicinal products, registries, European reference networks, centres of expertise, and specialized social services. If you would like to learn more, the presentations are available on the EURORDIS website

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