Eight Student Recipients of Chart Your Own Course Scholarship Program

Dan Leonard | October 09, 2013

In our everyday work, my colleagues in Patient Advocacy and I see firsthand the challenges faced by individuals and families living with lysosomal storage disorders (LSDs). Much of the work is centered on learning about these challenges and trying to create programs to help support these unmet needs. In creating the Chart Your Own Course (CYOC) scholarship program in the United States, our goal was to help members of the LSD community make their educational dreams a reality.

We were delighted to be able to launch the program earlier this year and with the robust response to the program. We were thrilled to be able to award scholarships to eight students in the U.S. living with an LSD. The scholarships of $2,500 each will support educational pursuits in a wide variety of areas, such as English, biology, public health, and medicine. The recipients will be attending schools all over the country, from the University of North Carolina at Chapel Hill to the University of California at San Diego. The selection process is overseen by an independent review committee and is open to students pursuing undergraduate, graduate or continuing education studies.

I had the chance to talk with one recipient, a young man living with Pompe disease, who said that so many of the scholarship opportunities found online seemed to be a “shot in the dark” whereas CYOC felt like it was designed exactly for people like him. He is starting his first year of medical school and plans to specialize in neuromuscular disorders to help others diagnosed with Pompe disease.

We are honored to support the LSD community through this initiative and look forward to helping more students through the CYOC program in the future. We wish all of the applicants and recipients the best of luck in their studies!





  • Was this article useful?
Dan Leonard's picture
  • Share:
  • Twitter