Education Through Images: Rare Disease Advocates Pose for Positive Exposures

Kathleen Coolidge | October 31, 2012

Positive Exposure’s Gallery exhibits amazing and stunning images of children, adolescents and adults happily posing with huge smiles on their faces. What’s so special about that? Each of them is living with a rare disease and participating in a program to help educate others about their disease.

Among the many programs offered by Positive Exposure, an arts organization dedicated to raising awareness for genetic differences, it’s the PEARLS program (http://www.positiveexposure.org/pearlsproject/) that provides a unique venue to educate elementary and high school students on the obstacles facing their peers who, in addition to normal teenage pressures, face the added challenge of living with a rare disease. The PEARLS project offers an outlet for teens to post pictures and blog about their experiences in the hopes that they will become future advocates for the rare disease community. If it’s true that a picture is worth a thousand words, PEARLS’ message comes through loud and clear as the number of schools and community centers it visits is increasing. Stop by www.positiveexposure.org and/or http://www.facebook.com/?ref=tn_tnmn#!/positiveexposure to see what the buzz is all about.

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