We are delighted to bring you are second video in our new series called Advocate to Advocate. We created this series based upon feedback you provided to us. Namely, you’d like to learn more about best practices, and to hear more from advocates around the world who lead organizations. Today, I am pleased to introduce the Executive Director of the National Gaucher Foundation, Rhonda Buyers. Founded in 1984, the NGF is an independent, non-profit organization that provides support to people with Gaucher disease in the United States. Its mission is to promote research towards alternative treatments and a cure for Gaucher disease; to provide education, outreach and awareness to the community and to meet the ever-increasing needs of individuals with Gaucher and their families. Rhonda has been the Executive Director of the NGF for the last 21 years and has a strong background in non profits and volunteer efforts, which has been her way of demonstrating her commitment to making a difference in the world. She has a powerful personal and professional connection to the Gaucher community and has gotten to know not only the disease, but the individual patients, families and health care professionals in this community for over two decades. In this interview, Rhonda shares a few thoughts on what she has taken away from her experience working with the rare disease patient community, and what she advice she has for others.
In this interview, Rhonda shares a few thoughts on what she has taken away from her experience working with the rare disease patient community, and what she advice she has for others.
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