PAL Award Review Committee Announced!

Barbara Diana | August 27, 2015

We are pleased to announce that the external Review Committee for the 2015 PAL Awards program has been selected. Together, Jean Campbell, Patricia Collins, and Pat Furlong bring a tremendous depth of knowledge and expertise in global non-profit fund...

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Keep Connected, by Vanessa King

Annamarie Dillon | August 13, 2015

It gives us great pleasure to share the sixth blog post in the series for rare disease caregivers entitled, "Building Resilience" by Vanessa King. Human beings are social creatures; we thrive on a sense of belonging and companionship.Research shows ...

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Have you found your voice?

Lori Gorski | August 05, 2015

“Patient Advocacy? I can totally see that,” said a colleague when I said that I would be taking on a new role in Patient Advocacy. It’s always scary to try something new, and I am so grateful for these simple words of support. After seven year...

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Announcing PAL Awards 2015!

Barbara Diana | July 29, 2015

We are pleased to announce the fifth annual Patient Advocacy Leadership Awards (PAL Awards) program for non-profit patient organizations that serve the lysosomal storage disorder (LSD) patient community. The PAL Awards program supports innovative co...

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Move More, by Vanessa King

Annamarie Dillon | June 09, 2015

It gives us great pleasure to share the fourth blog post in the series for rare disease caregivers entitled, "Building Resilience" by Vanessa King.Let’s start with two questions: 1.  Is exercise good for our bodies, our minds, or both?2.  What...

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