Announcing PAL Awards 2015!

Barbara Diana | July 29, 2015

We are pleased to announce the fifth annual Patient Advocacy Leadership Awards (PAL Awards) program for non-profit patient organizations that serve the lysosomal storage disorder (LSD) patient community. The PAL Awards program supports innovative co...

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Move More, by Vanessa King

Annamarie Dillon | June 09, 2015

It gives us great pleasure to share the fourth blog post in the series for rare disease caregivers entitled, "Building Resilience" by Vanessa King.Let’s start with two questions: 1.  Is exercise good for our bodies, our minds, or both?2.  What...

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